I did a sociology thesis at the EHESS on the experiences of overweight and obese people in France, Germany and England and in particular on the processes of stigmatisation and discrimination in these three countries. I then worked at the Gustave Roussy Institute on paediatric oncology care pathways in the framework of the development of precision medicine. Whether it is on paediatric oncology or obesity, my work focuses in general on recent developments in the organisation of care, inequalities in access to health and the role of patient associations and patient-experts. 

I am involved in two projects on paediatric oncology: one relating to the development of the France Genomic Medicine 2025 Plan in paediatric oncology and the other relating to the Europeanisation of paediatric oncology care.

My two projects are carried out within the framework of the SHS-INCa Chair of Excellence on the Social Challenges of Personalised Medicine & Innovations in Cancerology at the Claude Bernard University in Lyon, which Sylvain Besle directs and to which I am also attached. 

The first project deals with recent developments in paediatric oncology linked to the introduction of genomic sequencing for all children with advanced cancer since January 2020, as part of the PFMG 2025 plan. The aim of the project is therefore to understand recent developments in the organisation of care for children with advanced cancer in the context of the routine implementation of precision medicine. The second project looks at how paediatric oncology is trying to get on the European public policy agenda, and in particular the role of parents' associations in this process. The role of innovation and research is a particularly enlightening subject in this context in order to grasp the regulatory developments over the last twenty years, the progressive structuring of the field, as well as the inequalities in access to innovations in the various European countries.

Start and end date - September 2020 - December 2022  

Solenne Carof's CV on the GEMASS website